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About the Documentary     

The goal of “Living with Fragile X” is to educate audiences about the syndrome... but the documentary is also meant to reveal a new view of those in our society that are traditionally considered “flawed” or “abnormal”. Who decides what’s normal? Because an individual is different than you and me, should he or she be “fixed”?

“Living with Fragile X” takes a rare and intimate look at the lives of several families who live with a member affected by fragile X syndrome.

Fragile X is the leading cause of inherited mental disability and the leading known cause of autism.

“Living with Fragile X” explains what fragile X is and how it is passed, exposes the day-to-day challenges faced by those who have fragile X and reveals the frustrations of parents and their fears for what the future holds.

Having trouble watching the trailer? Click here.

Help us get the word out about fragile x syndrome, feel free to download the contents and use them on your website. Download video and artwork for your website.

Families and Experts
To learn more about the people involved in the documentary, click the links below.



Fundraising with "Living with Fragile X"

If you would like to show “Living with Fragile X” at your next fragile X fundraising event, we have a system in place for use of the copyrighted documentary. Please visit our Fundraising Tools page for more information.

View "Making Living with Fragile X" Slideshow

Read the Santa Cruz Sentinel article about the documentary.


Watch Trailer | Buy DVD | Main Menu | Contact | Downloads | YouTube


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