About the Documentary


The goal of “Living with Fragile X” is to educate audiences about the syndrome... but the documentary is also meant to reveal a new view of those in our society that are traditionally considered “flawed” or “abnormal”. Who decides what’s normal? Because an individual is different than you and me, should he or she be “fixed”?

“Living with Fragile X” takes a rare and intimate look at the lives of several families who live with a member affected by fragile X syndrome.

If you have any questions or want more information about Fragile X Syndrome, please contact The National Fragile X Foundation.

Living with Fragile X aired on PBS and was distributed by NETA for educational purposes. As a public service, we have made the full-length documentary available to view from this website.

For information about the documentary, email us at: info@livingwithfragilex.com

Watch the documentary:

Watch Living with Fragile X Documentary Play

Video Extras